{"id":34,"date":"2015-01-28T11:36:22","date_gmt":"2015-01-28T10:36:22","guid":{"rendered":"http:\/\/www.gruppoporfiria.it\/?page_id=34"},"modified":"2024-01-23T13:54:54","modified_gmt":"2024-01-23T12:54:54","slug":"links-utili","status":"publish","type":"page","link":"https:\/\/www.gruppoporfiria.it\/?page_id=34","title":{"rendered":"Links Utili"},"content":{"rendered":"<p><a href=\"http:\/\/www.drugs-porphyria.org\" target=\"_blank\" rel=\"noopener\">NAPOS<\/a>\u00a0 &#8211; \u00a0Database aggiornato sui farmaci utilizzabili (safe) e pericolosi (unsafe) per i pazienti affetti da porfiria acuta (PAI, PV, CPE e ALAD-P)<\/p>\n<p><a href=\"http:\/\/www.porphyria-europe.com\" target=\"_blank\" rel=\"noopener\">EPNET (European Porphyria Network<\/a>) \u00a0&#8211; \u00a0Network europeo dei centri di riferimento per la diagnosi e cura delle porfirie<\/p>\n<p><a href=\"http:\/\/www.orpha.net\/consor\/cgi-bin\/index.php?lng=IT\" target=\"_blank\" rel=\"noopener\">Orphanet<\/a>\u00a0 &#8211; \u00a0Portale europeo di riferimento per le malattie rare<\/p>\n<p><a href=\"http:\/\/www.orphan-europe.com\/\" target=\"_blank\" rel=\"noopener\">Orphan Europe<\/a>\u00a0 &#8211; \u00a0Azienda farmaceutica specializzata nelle malattie rare<\/p>\n<p><strong>Associazioni nazionali di pazienti e\/o professionisti nel campo delle porfirie:<\/strong><\/p>\n<p><a href=\"https:\/\/www.viviporfiria.it\/\" target=\"_blank\" rel=\"noopener\">Associazione Vivi Porfiria<\/a><\/p>\n<p><a href=\"http:\/\/www.porfiriadomenicotiso.it\" target=\"_blank\" rel=\"noopener\">Associazione Italiana Malati di Porfiria Domenico Tiso<\/a><\/p>\n<p><a href=\"http:\/\/www.porfiria.it\" target=\"_blank\" rel=\"noopener\">Amici della Porfiria San Pio da Pietrelcina<\/a><\/p>\n<p><a href=\"http:\/\/www.porphyriafoundation.com\" target=\"_blank\" rel=\"noopener\">American Porphyria Foundation<\/a><\/p>\n<p><a href=\"http:\/\/www.porphyria.org.uk\/\" target=\"_blank\" rel=\"noopener\">British Porphyria Association<\/a><\/p>\n<p><a href=\"http:\/\/www.porphyria.uct.ac.za\" target=\"_blank\" rel=\"noopener\">Porphyria South Africa<\/a><\/p>\n<p><a href=\"http:\/\/www.porphyries-patients.org\" target=\"_blank\" rel=\"noopener\">Association Fran\u00e7aise des Malades Atteints de Porphyries<\/a><\/p>\n<p><a href=\"http:\/\/www.porfiria.org\" target=\"_blank\" rel=\"noopener\">Asociaci\u00f3n Espa\u00f1ola de Porfiria<\/a><\/p>\n<p><a href=\"http:\/\/www.porfyri.se\/\" target=\"_blank\" rel=\"noopener\">Swedish Porphyria Association<\/a><\/p>\n<p><a href=\"http:\/\/www.porfyri.no\" target=\"_blank\" rel=\"noopener\">Norsk Porfyriforening<\/a><\/p>\n<p><a href=\"https:\/\/www.gpac-porphyria.org\/\">Global Pophyria Advocacy Coalition<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>NAPOS\u00a0 &#8211; \u00a0Database aggiornato sui farmaci utilizzabili (safe) e pericolosi (unsafe) per i pazienti affetti da porfiria acuta (PAI, PV, CPE e ALAD-P) EPNET (European Porphyria Network) \u00a0&#8211; \u00a0Network europeo dei centri di riferimento per la diagnosi e cura delle porfirie Orphanet\u00a0 &#8211; \u00a0Portale europeo di riferimento per le malattie rare Orphan Europe\u00a0 &#8211; \u00a0Azienda <a href='https:\/\/www.gruppoporfiria.it\/?page_id=34' class='excerpt-more'>[&#8230;]<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":8,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-34","page","type-page","status-publish","hentry","post-seq-1","post-parity-odd","meta-position-corners","fix"],"_links":{"self":[{"href":"https:\/\/www.gruppoporfiria.it\/index.php?rest_route=\/wp\/v2\/pages\/34","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.gruppoporfiria.it\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.gruppoporfiria.it\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.gruppoporfiria.it\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.gruppoporfiria.it\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=34"}],"version-history":[{"count":12,"href":"https:\/\/www.gruppoporfiria.it\/index.php?rest_route=\/wp\/v2\/pages\/34\/revisions"}],"predecessor-version":[{"id":732,"href":"https:\/\/www.gruppoporfiria.it\/index.php?rest_route=\/wp\/v2\/pages\/34\/revisions\/732"}],"wp:attachment":[{"href":"https:\/\/www.gruppoporfiria.it\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=34"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}